Support Groups: For questions about these groups or to RSVP email Casey at CaseyBerna@gmail.com
Endometriosis Education and Support Groups: Casey hosts two, free, virtual education and support groups a month for endometriosis patients.
I run a group every 3rd Saturday of the month from 10am-11am est through zoom. Email Casey to sign up.
Through the Lasa App, I run another free support group every 3rd Wednesday of the month from 7:30pm-8:30pm est. Here is the registration link: https://lu.ma/6h5oerhw
Virtual Fertility Group: Casey hosts a free infertility support group for those who are in and around Wilmington, NC every 3rd Wednesday of the month from 6:00pm-7:00pm. Reach out to Casey via email to sign up.
Windy Ezzell, LCMHC, a long time mental health provider in the fertility and pregnancy loss communities also is running two groups at our offices at 2450 Delaney Ave Wilmington, NC 28403. One group is on the 2nd Tuesday evening of every month and is for fertility support and the second one is for pregnancy after infertility or loss. Contact Windy at windy@innersolutionscounseling.com for more information.
National Resources
Facebook Education Groups: Facebook groups can be a great place to find information and community. Some Facebook groups have more accurate information than others, also some groups are more welcoming to BIPOC and those in the LGTBQIA+ community than others. Below are some of the more popular Facebook groups in the community where the search feature can be a great resource to get information needed. EndoBlack: Specifically for the African American Community and other women of color. EndoQueer Endo Knows No Gendo: Specifically for LGTBQIA+ individuals Nancy’s Nook Endometropolis EndoWarriors
Websites that have extensive information:
The Endometriosis Summit ExtraPelvic Not Rare EndoWhat.org EndoBlack The Endometriosis Coalition The Center for Endometriosis Care Vital Health
Helpful Books, Podcasts, and Documentaries: Beating Endo: How to Reclaim Your Life from Endometriosis by Dr. Iris Orbuch and Dr. Amy Stein Know Your Endo: An Empowering Guide to Health and Hope with Endometriosis by Jessica Murnane 28 Ways on How to Advocate for Your Healthcare by Shantana May EndoWhat Documentary by Shannon Cohn EndoTruths: Infertility and Mental Health Documentary Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed and Sick By Maya Dusenbery featuring endometriosis advocates Heather Guidone and Shannon Cohn. My FemTruth: Scandalous Survival Stories Good Girl, Bad Period: Breaking the Silence on Misogyny and Gaslighting through the Lens of Endometriosis Endo Battery Podcast. Part of You, Not All of You: Shared Wisdom and Guided Journaling for Life With Chronic Illness by Jenneh Rishe Below the Belt Documentary by Shannon Cohn
For national infertility resources and information, virtual and local support groups, and advocacy initiatives the following organizations have extensive information and support: RESOLVE New England RESOLVE
For national pregnancy loss resources and information, virtual and local support groups, advocacy initiatives, and patient education, the following websites have extensive information and support: Sisters in Loss Black Moms in Loss Support Group Recurrent Pregnancy Loss Association Reproductive Immunology Center
For virtual endometriosis support groups and more information on local national support groups: The Endometriosis Coalition is a nonprofit that runs a monthly support group.
Bre Crisp runs an endometriosis group
Mental Health Support: Endometriosis impacts patients both physically and mentally, often creating medical trauma and a state of crisis for patients. This can lead to PTSD, anxiety and depression. Please come back to check out more specific, local resources for endometriosis patients. But, the following links are important mental health resources. Suicide Prevention Hotline Therapy for Black Girls The National Queer and Trans Therapists of Color Network Building Endurance LLC
*For local multidisciplinary care resources and support, feel free to contact Casey at caseyberna@gmail.com or sign up for one of the free monthly support groups.
